JK here we come!

I can’t believe that we have a school-aged little girl! Where has the time gone?

When Stella was first diagnosed as a coping mechanism, we forgot all the milestones and lifelong dreams we once had for her. And we lived in the present. Every day on its own. With our precious girl and how she was doing at the time. And slowly, as the days turned into weeks, and the months turned into years we now are occasionally caught off guard by how far we’ve come. How far Stella has come.

To say that the idea of sending Stella to full day junior kindergarten is daunting and the amount of work involved that has gone on to make this a reality has required a small army of people is an understatement. To say we are beyond excited for Stella in this new adventure of friendship, learning and independence is also an understatement. Worth every email, phone call, school meeting, follow up email, reminder phone call, observation meeting, report findings, case conference, repeat, repeat, repeat. You get the idea.

We have had a very positive case meeting at the school with the key players including CCAC who will be co-ordinating her nursing support and equipment needs, as well as the Peel District School Board Special Education Liaison who will ensure Stella’s ongoing needs are met and supported, and the school administration, teachers and support staff who have been warm, inviting and very accommodating. We have also had the added work of co-ordinating before and after school care as both Myles and I work hours beyond the school day. Again we have been (surprisingly) happy with their acceptance of Stella in their programs and their willingness to acquire the extra help Stella will need.

We know there will be bumps in this road, but we are keeping our eye on the prize of one very happy little girl who couldn’t be more thrilled to be heading off to “big girl school” in September! We are in awe of our beautiful girl and all her accomplishments. We also know how lucky we truly are. And how far away this goal seemed just three years ago.  It gives us so much hope to dream of the future.

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Cure SMA at Little Rock Farm, Perth

A few weekends ago we headed out Ottawa way, to Perth Ontario for the 3rd annual Cure SMA at Little Rock Farm event hosted by Jenna, Eddie and Mason Stewart. Mason was diagnosed with SMA type 3 in the spring of 2011 and the family has been raising money and awareness ever since. We had a great time joining the walk, enjoying the delicious BBQ, music and dancing. Stella loved giving Mason rides on the back of her wheelchair and these two have been having Skype dates ever since! Thanks Stewart family for your hospitality and for raising an astounding $30,000 for SMA!

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Stella is 4!

Happy Birthday beautiful girl!

Miss Stella you know what you want, you’re sassy, and you’re sweet as pie! We are so proud of you and all the accomplishments you have mastered in your short four years. You are so smart and quick to learn new things. You’re inquisitive and ask one million questions every day. You have such a kind heart, sympathizing with others, despite your own obstacles. When you put your little arm on my should and say “its okay mama” it makes me smile and weep all in the same instant. You love your family and friends and we were so happy to get to celebrate our amazing girl with most of them over a number of days at the end of April.

Stella really wanted a rainbow sprinkle princess party. And so that’s what she got! Myles outdid himself with the cake. There may have been a crazy run on food colouring and sprinkles at our local Loblaws! ;) And I hit the computer,  getting my digital craft on. Its hard in the era of Pinterest not to go overboard, but we do have so. much. fun. putting it all together. And Stella actually does appreciate the effort, noting in a hushed voice “its soooooo beautiful”. melt. We hired in a princess who was AMAZING. Stella was speechless for a few minute. A rarity. And then wouldn’t stop talking to Rapunzel. They sang, they did makeup and nails and then we blew out the candles on Stella’s wickedly yummy and uber gorgeous cake.  And we all had a fabulous time!

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Join Team Stella 2014!!!

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Help us celebrate Stella turning 4 by helping us to fight SMA!
The annual Rebecca Run in Newmarket is July 5th this year and we will be doing the 3km walk/run/roll.
If you are interested in joining us, please sign up online by clicking here:http://www.events.runningroom.com/site/?raceId=10062 and join “Team Stella”. You do not have to pick up the race kit ahead of time as long as you arrive early enough the day of – you can register then. If you are new to the race, please email me atsarahwillgetthis@hotmail.com with your size preference as we have custom shirts available for everyone. The event is rain or shine. And we’ve had both! Please make sure to dress accordingly. Lunch is provided for every registered participant.
 
If you are unable to join us physically, you can donate to finding a cure, treatment, and supporting families with SMA, through a monetary donation by clicking here: http://www.giving.runningroom.com/hm/ and pledge an athlete – Myles Bartlett with your contribution.
We thank you for your continued to support of Stella, our family, and to one day finding a cure for SMA!
XO S+M+s+o
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Hoppy Easter!

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Fsma Ontario goes bowling!

We had a great time taking Stella bowling for the first time in a social we planned for the Ontario Chapter of FSMA! It was so much fun!!!

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Fun and Adventure

Hair cuts, reading, new shoes, Oliver an Stella’s new tandem riding, and pool dates!!! :)

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Snow snow snow!

We braved the cold and took the kids tobogganing! We had so much fun!!!

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Oliver is 2!

We had a great time celebrating Oliver’s 2nd birthday with friends and family. Myles made an amazing cake and a dino-mite time was had by all!

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Happy Valentines Day!

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